Illness
On March 23, 2006, Jordan disclosed in a statement[2] in a firm and optimistic tone that he has been diagnosed with primary amyloidosis with cardiomyopathy, and that, with treatment, his median life expectancy is four years, though he says he intends to beat the statistics. He later posted on his Dragonmount blog to encourage his fans not to worry about him and that he intends to have a long and fully creative life, working for another 30 years.
He began chemotherapy treatment at the Mayo Clinic in Rochester, Minnesota in early April 2006.[3] Mr. Jordan is currently enrolled in a study using a drug just approved for multiple myeloma but not yet tested on primary amyloidosis. On September 15, 2006, he added a post to his blog noting good news concerning his condition (though he has not yet gone into remission).
On November 8, Jordan confirmed the report of his progress in a post on the Dragonmount blog, stating that he had experienced a 25% reduction in Lambda light chain levels. The wider results of his test group, studying treatment under the drug Revlimid, is inconclusive showing (according to Jordan) numbers that are "all over the place". The reduction is in spite of the fact that Jordan was taken off the Revlimid due to some kidney troubles believed linked to the treatment. However, with this situation stabilized he is back on the drug and is enjoying the freedom of home-care; sending self-collected blood samples in monthly, receiving medications by mail, and returning to the Mayo Clinic in three month intervals.
On December 22, Jordan announced that his Lambda light chain levels had gone down to a rating of 3.14 (with 1 to 3 being considered normal / healthy).[4] This level refers to the amount of amyloid like material found on examination, and gives prognostic information to physicians.
On January 22, Jordan's blog announced that the Lambda light chain levels had dropped to a rating of 2.70.[5] This reduction was sustained throughout another break in Jordan's use of Revlimid, which he briefly came off again due to side effects attributed to the drug. It should be noted that for the first time since his diagnosis in March 2006 Mr. Jordan's Lambda light chains are within the normal limits.